Case Studies

These glossary terms were selected to support understanding of public engagement objectives throughout the clinical research lifecycle. Each term was developed and reviewed with input from community members engaged in clinical research. This glossary serves as an optional resource for reference.

Collaborative Decision-Making – Individuals and research teams working together to make decisions and design research.

Equitable Engagement – Enabling individuals who represent diverse viewpoints, experiences, communities, backgrounds, and perspectives to partner with research teams.

Methods of Engagement – Practical ways to include the ideas and opinions of individuals and communities in research.

Sustainable Engagement & Capacity Building – Ensuring research partnerships have the necessary resources, including support and training, to continue long-term.

Return of Research Value – Making sure that research and its results are effectively communicated and understood by participants and involved communities.

*Please note that NIH is actively working with community partners to ensure these engagement objectives and their definitions are useful, meaningful, and effective for patients, caregivers, and communities. We appreciate your feedback in ensuring that these objectives are helpful and meet the needs of all users.