Case Studies
Case Studies
NIH has compiled a collection of easy-to-use summaries of tools and strategies for increasing public engagement in clinical research (see here for FAQs on engagement). These tools and strategies can be used by researchers, patients, patient advocates, caregivers, and communities to strengthen engagement approaches. This resource is intended to be a collection of engagement resources, tailored to the specific needs of the user and their goals. Please check back to this webpage regularly, as it will be periodically updated with new summaries.
Definitions for each engagement objective can be found in the glossary.
Coalition of Patient Advocacy Groups
The Coalition of Patient Advocacy Groups works together to find the causes of all rare diseases studied in the Rare Diseases Clinical Research Network.
Community Partnerships to Advance Science for Society (ComPASS)
ComPASS is an NIH program that directly funds community organizations to create and test interventions.
NINDS Nonprofit Forum: Progress Through Partnership
The Nonprofit Forum happens once a year and brings together diverse voices in the neurological disorder community to discuss research priorities and build relationships.
Community Convenings with Faith-Based and Community Partners
Community Convenings are in-person conversations between community members and research to learn about All of Us research results.
Building Research for Academic and Community Equity (BRACE) Toolkit
The BRACE Toolkit provides information and templates for both community organizations and researchers to help them work together during the research process.