Case Studies

Collaborative Decision making – Patients, community members, and research teams working together to make decisions and design research.

Equitable Engagement – Enabling patients and community members with diverse viewpoints and experiences to partner with research teams.

Methods of Engagement – Practical ways to include the ideas and opinions of patients and community members in research.

Sustainable Engagement and Capacity Building – Ensuring research partnerships have the resources and support to continue long-term.

Defining Return of Value – Making sure that research and its results are useful for patients and communities.

*Please note that NIH is actively working with community partners to ensure these engagement objectives and their definitions are useful, meaningful, and effective for patients, caregivers, and communities. We appreciate your feedback in ensuring that these objectives are helpful and meet the needs of all users.